I’m a dad that does Ironman, have carried my son around Challenge Denmark, an iron distance triathlon, as well as 3 other solo iron distance events. I’m a charity CEO, 2016 Pride of Sport Winner, 2015 Just Giving ‘Outstanding Commitment to Fundraising winner’.
But what I’m really trying to do is save my son’s life. He has Duchenne Muscular Dystrophy, a 100% fatal genetic condition with no cure and no treatment.
It is the biggest genetic killer of children on the planet… so I started and am CEO of Harrison’s Fund. I’m trying to save the lives of boys with Duchenne by raising enough money to fund promising research. I’m not a doctor but what I really can do is raise a lot of money in the 10 years we have to fix this.
If you’ve got Duchenne, you can’t produce dystrophin, a protein you need to build up your muscles and as a result every muscle in the body deteriorates. Most kids with it die in their late teens or early twenties, are usually in a wheelchair by the age of 12 and it leads to respiratory failure, heart failure, and other debilitating complications.
One in 3,500 boys is born with it, and in the UK 2,500 kids has it at the moment. You can have it, no matter where you are or what your ethnic background is. A third of all cases start in the womb, with no warning before the baby is born.
I’m going to raise a £1M this year and am asking foundations, companies and individuals to go on our website and press the big orange button and pledge their support. If you’re just interested in giving a helping hand please get in touch, firstname.lastname@example.org and if nothing else please ‘like’ our Facebook page www.facebook.com/HarrisonsFund and ‘share’ it with your friends.